The Clark brothers reached their 30s before begining to lose their faculties, and are reverting to childhood. It was extremely moving.
The Clark Brothers
Many of you will remember my student Alex who suffers from Adrenoleukodystrophy, a form of the condition that generally strikes boys aged between 5 and 10, disabling them comletely within months, and usually killing them within two years. The condition figured in the film Lorenzo's Oil. Alex, like Lorenzo, is a long-term survivor, and is now 19. He, his mother Sara and his brother Ayden featured in the programme (so did their dog JJ). The link below will take you to the programme via the online on-demand facility. Sadly, I doubt if it works outside the UK.
http://www.channel4.com/programmes/the-curious-case-of-the-clark-brothers/4od
It's also repeated on Thursday at 11.25pm on Channel 4.
on Channel 4 at 11.25pm on Thursday. I highly recommend it.
It must be hard to diagnose a condition that's so rare.
ReplyDeleteSaw the trailer, but was watching a fascinating (if sometimes gross!) documentary about the history of toilets on BBC4, so thanks for the heads-up about the repeat.
ReplyDeleteI meant to watch this but got distracted by form-filling I had to do...will catch it on the on-demand service in the morning..thank you for the reminder
ReplyDeleteI did read an article on them a while back...made for sad reading
My brother has actually worked with a girl who has this condition...She's 18, but mentally she's regressed to the age of two. It's incredibly sad.
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